I'm not talking the dance here. Although that would be so much fun! Someone needs to have a party in a few months where we can dance the limbo, don't you think?
I'm really talking about limbo as it relates to a waiting period. I mentioned in my last post that we needed to see the oncologists next. I have three that I am scheduled to speak with. Jeff and I already met with one this past Tuesday. All of the oncologists come with amazing credentials, top notch referrals and best in their field. The oncologist we met with this past week said that he would recommend the C treatment for 4-4.5 months. I refuse to say the word at this point. This was a surprise for Jeff and I to hear as it probably is for you right now too. We thought we were lymph node negative. It seems there is a microscopic metastisis that was found upon further lab testing...so although the sentinel lymph node examined during surgery indicated negative lymph node further testing by the pathologist gave additional information that wasn't available at the time of surgery that indicated otherwise. Ok so here's what we have to do. I have two more oncologists to see and will be better informed after I see them -- August 3rd. There are different ways to treat this and I'm still holding out for a less invasive treatment. So while we are in limbo I ask you to hold the space for a less invasive treatment...ok? Each day is a new day for me as is every day is for all of us. Make the best of it!
My deepest gratitude to my niece Lauren for all that she has done. She moves to Sacramento on Sunday to begin working for a solar company -- Ecostream http://www.ecostream/. Her email is vandyke_lc@yahoo.com. If you have any folks you can connect her with up in the Sacramento area that would help me the best right now. She has been a very bright light, and will continue to be, during this very trying time in my life.
Love
Karen
I'm really talking about limbo as it relates to a waiting period. I mentioned in my last post that we needed to see the oncologists next. I have three that I am scheduled to speak with. Jeff and I already met with one this past Tuesday. All of the oncologists come with amazing credentials, top notch referrals and best in their field. The oncologist we met with this past week said that he would recommend the C treatment for 4-4.5 months. I refuse to say the word at this point. This was a surprise for Jeff and I to hear as it probably is for you right now too. We thought we were lymph node negative. It seems there is a microscopic metastisis that was found upon further lab testing...so although the sentinel lymph node examined during surgery indicated negative lymph node further testing by the pathologist gave additional information that wasn't available at the time of surgery that indicated otherwise. Ok so here's what we have to do. I have two more oncologists to see and will be better informed after I see them -- August 3rd. There are different ways to treat this and I'm still holding out for a less invasive treatment. So while we are in limbo I ask you to hold the space for a less invasive treatment...ok? Each day is a new day for me as is every day is for all of us. Make the best of it!
My deepest gratitude to my niece Lauren for all that she has done. She moves to Sacramento on Sunday to begin working for a solar company -- Ecostream http://www.ecostream/. Her email is vandyke_lc@yahoo.com. If you have any folks you can connect her with up in the Sacramento area that would help me the best right now. She has been a very bright light, and will continue to be, during this very trying time in my life.
Love
Karen
6 comments:
I talked to Lauren a couple days ago and heard this disappointing news. I will remain optimisitic about alternatives, but 4 months of "C" might be the lesser of two evils. Case in point...About 12 years ago a friend of mine was told she was cancer free after melanoma surgery. But 2 years later she learned it had spread all over. She was fortunate to receive an experimental interferon therapy that was sucessful, but it's side effects put her on disability for over almost 2 years!
Hang in there during the next few days of "limbo." And you know, I'm always here for you!
Love...
Nichole
Your postings are heartwarming and inspirational. If there is anything I can do, don't hesitate to ask. Ed Carnot
sometimes I pull up your blog just to see your smiling face!! Sending you healing thoughts and love,
Julie and company
Karen YOU CAN DO IT! I know you can and I know you will make the best of it. You always do. In the meantime, Paul and I miss you and wish you well. Sending loving and healing thoughts your way.
Oh yes, I forgot to say, I was so delighted to catch a mini sighting of you at the parking lot outside the medical building (where we couldn't park that day) and thought you really looked good!
Love, Ruth
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